I've just seen this post , and I was diagnosed back in 1999 with it .
I was being treated for pneumonia , and not recovering, then went to a specialist.
MRI scans and xrays confirmed this . Very rare and unusual apparently .
I hit this in multiple ways , changed my life style big time, and worked hard to relax.
I began to take a holiday, every 3 months, a week away from work, beach , riding trail bikes and chilling out .
I went to the homeopaths, got nuts and some cannabis oil 10 %
I visited a Body Allignment practitioner, weekly. She told me that my spirit line was beside myself.
What ever she was doing, had a strange effect on me, my stomach would gurgle and get super hot, I couldn't keep my eyes open ..
But , I always felt better after a session, and the first 3 months weekly, then down to once a month for a year.
Now, I visit her once a year just for a top up .
I cut out alcohol, all fizzy pop cold drinks, only water , Rooi Bos ( Red Bush) tea , no sugar , and heaps of salads, and steaks .
After 3 months the xrays showed a 20% less lymp node swelling. after a year , no more visible swelling.
The specialist told me , "what ever you are doing, keep it up, I've never treated anyone who has recovered without surgical intervention and major steroid use "
What ever , I was cured , so who knows if it was one or everything I did to recover .
So , I Hope the OP has recovered too , and continues to enjoy good health .