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Need to vent

R

roger2686

Member
Dec 29, 2019
20
8
#1
Last month I had rhabdo . I got bloods done a week later high hemoglobin. I got bloods done again the week after high hemoglobin again. I got bloods done yesterday, lab calls I need to go to e.r, I have high hemoglobin. I got Polycythemia vera. I have an oncology appt Monday I'm so fucking lost

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Zomb131

Zomb131

VIP Member
Jan 31, 2011
1,113
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#2
The lab assumes you have a carcinoma of your red bone marrow like multiple melanoma. You'll need some further blood, urine, and imaging done.

Chill out till you get xrays, labs, and possible bone scan done.
 
R

roger2686

Member
Dec 29, 2019
20
8
#3
I had x rays today and labs 2 days in a row. They gave me a paper about Polycythemia vera

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Zomb131

Zomb131

VIP Member
Jan 31, 2011
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#4
I had x rays today and labs 2 days in a row. They gave me a paper about Polycythemia vera

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Most likely all the read off's and write up's will be done by your apt with oncology on Monday. Polycythemia vera is a side effect of something else. That's why you're being referred to oncology. Try to chill out.
 
R

roger2686

Member
Dec 29, 2019
20
8
#5
I looked at my blood work online and I've had high red blood cells and hemoglobin since 2017

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CFM

CFM

From Africa to Virginia Month Captain
Mar 18, 2012
993
671
#6
As I recall you're in AAS cessation. Last year my blood count remained in the red for 3 months post last injection. Month 4 I was normal. Hopefully your body is finding homeostasis and soon all will be well. Stay off the AAS, keep all your appointments.
 
S

searay

VIP Member
Dec 20, 2017
232
136
#7
everyone on gear has polycythemia. ive had it for yrs and no repercussions. I used to give blood but I now have low iron so once I have an infusion and that gets straightened out ill go donate .
 
MorganKane

MorganKane

VIP Member
Nov 12, 2012
1,274
483
#10
Did you tell your doc about your AAS abuse?

If not then go and tell him so, I am sure he will see this very different.
 
R

roger2686

Member
Dec 29, 2019
20
8
#11
Did you tell your doc about your AAS abuse?

If not then go and tell him so, I am sure he will see this very different.
Yes and he's refusing the bone marrow biopsy for a few months. My thought process is the aas I stopped on Dec 25th so shouldn't all of the e ester be out as far as increasing rbc hemoglobin and hemocrit? I just had 550ml of blood taken out yesterday and I actually turned WHITE . I'm normally very red . For now I'm diagnosed with secondary polycythemia. It means there's a different reason that is unknown to this point and more testing is needed. I had a hamburger today and I can tell as the days go on I get more red. Oh and all the walking around kills my legs since I'm still recovering from rhabdomyolysis. I'm pretty much supposed to just do household chores . My creatine levels jump from about 186 to 1400 depending on the amount of walking I do . My doctor actually wanted to admit me again for IV's but I declined as last time I was on fall risk so every time my butt lifted slightly off the bed an alarm went off and three angry nurses busted in the room. Not to mention I was on a heart monitor because my potassium magnesium were low and I was given blood thinners .


In my opinion they need long lasting blood thinners because within two weeks my hemoglobin 26.4 hemocrit 59.6 and Rbc 6.85 were all high again

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Zomb131

Zomb131

VIP Member
Jan 31, 2011
1,113
256
#12
Yes and he's refusing the bone marrow biopsy for a few months. My thought process is the aas I stopped on Dec 25th so shouldn't all of the e ester be out as far as increasing rbc hemoglobin and hemocrit?
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No, RBC's have a life of 90-120 days.
 
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