- Oct 3, 2016
Idiopathic hypersomnia, has this been looked into, Slic?...It's usually not caught....Also, it doesn't have any biological markers, I believe...Makes it hard to diagnose....Still researching....
I had a sleep study done and they claimed that everything was normal. Getting an endocrinologist or a primary care doctor to run the labs hasn't happened. I could ask for another sleep study at a different facility. Do you think there is a point to that?Idiopathic hypersomnia, has this been looked into, Slic?...It's usually not caught....Also, it doesn't have any biological markers, I believe...Makes it hard to diagnose....Still researching....
I had a sleep study done and they claimed that everything was normal. Getting an endocrinologist or a primary care doctor to run the labs hasn't happened. I could ask for another sleep study at a different facility. Do you think there is a point to that?
Find a new doctor.This issue has been going on since I was a child. It's why they put me on prescription amphetamines. Getting a script for adderall is incredibly easy. I believe there is 3 different tests for thyroid and 2 for testosterone. TSH, T3, T4 for thyroid and total test, free test for testosterone. I have zero chance of my primary care doctor doing anything whatsoever. My doctors just pass the buck and won't do shit to help.
Out of curiosity what does your Hemoglobin look like?I have had this issue my whole life. My parents took me to the primary care doctor who referred them to an endocrinologist when I was 7 years old. I have consistently felt tired. I remember the endocrinologist ran a bunch of tests and found nothing out of the ordinary so he referred them to a neurologist who ran more tests and found nothing. I have repeated this same process multiple times as an adult. The end result is that I am then referred to a psychiatrist who prescribes prescription amphetamines. I've been clean off those for 16 years. Since then that's been the end result every time I see a new doctor. I am planning to have blood work done which I will post here to see if anyone sees anything out of the ordinary. There's a few things I find odd with whatever is going on. First I sleep for 10 hours each night. I wake up feeling refreshed. That feeling lasts for 15 to 30 minutes. That's enough time to make breakfast and start a pot of coffee. Then after coffee I feel awake for another hour. I then take a bunch of herbs that stimulate me enough to make it out of the house about 90 minutes later. If I wasn't taking those herbs I would go back to sleep. Before I starting taking the herbs I would go back to sleep and kill the rest of the day. The stimulating herbs are the only thing that wakes me up enough and keeps me awake enough to drive the 10 minutes to work. I'm then feeling good for the next 2 hours. The part that I haven't been able to figure out or make any sense of is that the tiredness comes in waves. I'll feel good one minute and tired the next. The tiredness feeling can last 5 minutes or it can last 2 hours. It's a constant yoyo, which is why the psychiatrist is pushing adderall yet again. I don't really care for how amphetamines make me feel or the person I am on them. I can be a real asshole and it alters my mood. I won't go back on those no matter how many times my current psychiatrist and all the previous psychiatrists suggest it. I had the 23andme testing. The person I hired to interpret those results suggested the herbs which help tremendously. It's the constant yoyo type effect that is incredibly perplexing, so I'm going to order blood work to see what the endocrinologist sees. I've seen a good half dozen endocrinologists or more over the course of my life. I'm sure some of them are incompetent, but surely they can't all be. Does anyone have any ideas of other tests to run or what this could possibly be? I'm looking for a new psychiatrist. I've also tried modafinil and while I am awake I feel exhausted all day. In the last 20 years I've seen at least a dozen different psychiatrists. I think the number is probably closer to 20. I typically see one until they insist on prescription amphetamines and then I find a new one and just repeat the process. I've been on ritalin, wellbutrin, and adderall in the extended release that last 8 hours and the tabs that last 4 hours. Without it I would have not made it through college. This caused a shitload of problems when I was a kid and even on ritalin I would still fall asleep in classes. I can't think of what this could possibly be and all the doctors I have seen are clueless. I spent part of today looking for a new psychiatrist.
I have had brain scans done. I've had wires hooked up to my head for testing. I've spent the better part of two weeks with one doctor or another in a hospital while they did testing and stuck me in various machines. I'm happy to detail the dosages of the different prescription amphetamines that I've been on if anyone thinks there is a point to that. All I can think of is that it's something hormonal due to the yoyo type effect. Some years are better than others. The current psychiatrist is also recommending antidepressants even though I rarely feel sad.
I don't usually open up online. This is likely the first time I've ever shared anything like this. I'm posting this because I feel I have exhausted every avenue that I know of. This board has the highest quality members of any which is why it's being posted here vs elsewhere.
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