LadySparten
New Member
- Jul 12, 2015
- 9
- 3
After many years of being very ill. I was diagnosed with Primary Addison's disease (means my adrenals are damaged and through no fault of my own. Although they are investigating the exact cause it means I got the crappy throw of the dice and my autoimmune system has attacked my adrenal system and now it ceases to function) this April. It's a life threatening illness and has hospitalized me several times from suffering repeated addison adreanal crises till they finally did the right blood test to diagnose it. I am on HydroCortisone and FludroCortisone for life now.
Without going into great detail about it, I wanted to reach out and ask if any of you have an suggestions on reading (this illness is complex and affects everything. Take it easy on me I am new to it), ideas, others that are also athletes that suffer this, additional supplemental ideas, anything.
My (consulting) endo is about to get fired as the more I learn on this more the realize I have been booted out of hospital and left to figure it out. It's a slow learning curve and figuring it all out as it is so unique to each person that suffers it as well as the fact it is a pretty rare illness in the first place there are few actual cases of 'athletes' that can train and compete with this. (a gymnast and a cyclist here and there. it took them about 8 years to get the basics sorted out My days are spent fighting my corner and researching this as so far the existance is pretty miserable and disabled. I am 'again' just rehabbing myself out of a wheelchair and can manage 5,000 a day and have to lead a simple day in and out life till I/they figure out the lowest cortsteroid dose I can live on daily. Then after that you factor in training, stress, travel and so on and have to take more depending on a host of other variables and its a daily science. You do a little more than you should. You feel it like a mack truck (the pain is something else) or your in an ambulance on the way to the your next billing at the ER. Groans.
Prior to this diagnosis I was a figure competitor and spent many of my days training in power lifting, oly lifting and so much more before the episodes of illness became more permanent stays in a wheel chair and my clinging to any muscle I had left as I just got weaker and weaker. Now; I'm a blimp in my bed that's working on collecting bits for her home gym and can do a few sets with a pvc pipe and a resistance band. Go me! Seriously this is progress from a girl that lost so much of her VMO going for a poop was a struggle lmfao!
So my friends in training and iron. I see many of you seem well versed in many areas. I am looking forward to any suggestions or info you may have. Much thanks.
Without going into great detail about it, I wanted to reach out and ask if any of you have an suggestions on reading (this illness is complex and affects everything. Take it easy on me I am new to it), ideas, others that are also athletes that suffer this, additional supplemental ideas, anything.
My (consulting) endo is about to get fired as the more I learn on this more the realize I have been booted out of hospital and left to figure it out. It's a slow learning curve and figuring it all out as it is so unique to each person that suffers it as well as the fact it is a pretty rare illness in the first place there are few actual cases of 'athletes' that can train and compete with this. (a gymnast and a cyclist here and there. it took them about 8 years to get the basics sorted out My days are spent fighting my corner and researching this as so far the existance is pretty miserable and disabled. I am 'again' just rehabbing myself out of a wheelchair and can manage 5,000 a day and have to lead a simple day in and out life till I/they figure out the lowest cortsteroid dose I can live on daily. Then after that you factor in training, stress, travel and so on and have to take more depending on a host of other variables and its a daily science. You do a little more than you should. You feel it like a mack truck (the pain is something else) or your in an ambulance on the way to the your next billing at the ER. Groans.
Prior to this diagnosis I was a figure competitor and spent many of my days training in power lifting, oly lifting and so much more before the episodes of illness became more permanent stays in a wheel chair and my clinging to any muscle I had left as I just got weaker and weaker. Now; I'm a blimp in my bed that's working on collecting bits for her home gym and can do a few sets with a pvc pipe and a resistance band. Go me! Seriously this is progress from a girl that lost so much of her VMO going for a poop was a struggle lmfao!
So my friends in training and iron. I see many of you seem well versed in many areas. I am looking forward to any suggestions or info you may have. Much thanks.